Indian girl spontaneously bleeds through pores Oct 3, 2008
Dr. Drew Provan, from Barts Hospital in London, said the girl may have Type II von Willebrand disease, wherein there is a deficiency of a protein called von Willebrand factor that is essential during the initial stages of clotting. Twinkle, who has 3 sisters, lives with her family in the Alambagh area of Lucknow city, Uttar Pradesh, India. (Xinhuanet, China)
CSL Behring funds study of bleeding disorder Aug 19, 2008
2 million grant for researcher to conduct a first-of-its-kind nationwide study that, when completed, could serve as the basis for determining the best treatment for postpartum women with von Willebrand disease. Von Willebrand disease is the most common hereditary bleeding disorder in the United States ... According to the U.S. Centers for Disease Control and Prevention in Atlanta, von Willebrand disease affects 1 percent to 2 percent of Americans, or as many as 2. (Philadelphia Business Journal, PA)
Kids with hemophilia find hope, fun at active camp Jul 31, 2008
Other inherited blood disorders Von Willebrand disease is a more common inherited bleeding disorder affecting boys and girls. Most people with VWD have a mild case, suffering from lots of bruises and nosebleeds, and it often goes undiagnosed. (Atlanta Journal-Constitution -- Living)
Melissa Biggs, Fashion Designer and Former Baywatch Actress, Teams with CSL Behring to Raise Awareness of Alpha-1 Antitrypsin Deficiency, a Commonly Misdiagnosed Respiratory Disease May 18, 2008
The company's therapies are used in the treatment of immune deficiency disorders, hemophilia, von Willebrand disease, other bleeding disorders and inherited emphysema. Other products are used for the prevention of hemolytic diseases in the newborn, in cardiac surgery, organ transplantation and in the treatment of burns. (PR Newswire)
Windber grad’s cartoon bandages improve kids’ hospital visits May 8, 2008
Endress had the idea of collecting the Band-Aids after she was diagnosed with Von WilleBrand Disease. Often referred to as vWD, it is an inherited disorder that affects the blood's ability to clot properly. (Somerset Daily American, PA)
Local teen tries to raise money for ultrasound machine Feb 23, 2008
The physicians discovered she has a bleeding disorder called von Willebrand Disease. Then, in October 2006, her mother thought Victoria had a problem with dry skin and took her to a dermatologist. (Somerset Daily American, PA)
I Am...Home Schooled Jan 14, 2008
I was in the emergency room, diagnosed with Von Willebrand disease, a form of hemophilia. I was hospitalized for a long time. (FOX61, CT)
What's Going On Nov 25, 2007
There will also be a silent auction and 50/50 cash raffle, with 100 percent of the proceeds going to The Blood Center for research of Von Willebrand disease. VWD is a bleeding disorder similar to hemophilia. (Racine Journal Times, WI)
Menstrual bleeding treatment effective in all women Jun 13, 2007
Numerous reports have shown endometrial ablation to be useful in treating menorrhagia, even severe forms, in the general population, but relatively few studies have looked at its use in women with disorders, such as thrombocytopenia or von Willebrand disease, that make them prone to bleeding. To investigate, Dr. Abimbola O. Famuyide and colleagues, from the Mayo Clinic in Rochester, Minnesota, studied the outcomes of endometrial ablation in a reference group of 111 women and in 34 women... (Scientific American)
FDA Approves Drug For Common Bleeding Disorder, Humate-P May 1, 2007
Humate-P (Antihemophilic Factor/von Willebrand Factor Complex), a drug designed for the treatment of excessive bleeding during and after surgery, has been approved by the FDA. Patients with mild, moderate or severe vWD (von Willebrand disease), an inherited disease which affects about 1% of people, are susceptible to excessive bleeding during and after surgery. This is the second drug to be approved for patients with vWD, who experienced excessive bleeding during or after surgery, and for whom... (Medical News Today)
Health Highlights: April 28, 2007 Apr 29, 2007
The U.S. Food and Drug Administration approved on Friday a new therapy to prevent excessive bleeding during and after surgery in certain patients with von Willebrand disease (vWD). The disease is the most common inherited bleeding disorder, affecting about 1 percent of the U.S. population. (Forbes)
Summer camps: The play's the thing Apr 8, 2007
Description: Ages 7-14 who have hemophilia or von Willebrand disease can experience hiking, boating, fishing, golf, soccer, basketball, art and drama. Medically supervised. (San Diego Union-Tribune)
Alphanate Approved for Clotting Disorder Feb 6, 2007
For people with von Willebrand disease who require surgery ... FRIDAY, Feb. 2 (HealthDay News) -- The U.S. Food and Drug Administration has approved a biologic product called Alphanate for people with a bleeding disorder called von Willebrand disease (vWD) who require surgery. (MEDLINEplus)