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    News, Reviews, and Articles on Sickle Cell Anemia

    Latest News: Sickle Cell Anemia

    Novel small molecule therapy shows benefit for anemic patients via hydration of red blood cells  Feb 6, 2008
    WASHINGTON, February 5, 2008 Researchers are identifying innovative therapeutics for sickle cell anemia that focus on specific factors in the disease's progression, such as the important role of hydration of the red blood cells. According to a study prepublished online in Blood, the official journal of the American Society of Hematology, a novel small molecule therapy called senicapoc showed efficacy in maintaining hydration of red blood cells and increasing hemoglobin levels in patients with... (EurekAlert!)

    The kissing legislator: Borris Miles speaks out  Feb 1, 2008
    Miles has been hospitalized with complications of sickle cell anemia. I ve lived with that for 42 years of my life and I have to make sure I have a calm, peaceful life. (KHOU.com, TX)

    Best of the New: People & Ideas  Jan 27, 2008
    Finally, Jacob Hanna and Rudolf Jaenisch of the MIT-affiliated Whitehead Institute demonstrated that genetically-altered stem cells, made without tissue from human embryos, can cure disease - they used the cells to successfully treat sickle cell anemia in laboratory mice. FIGHTING FIRE WITH FIRE. (Boston Globe)

    Leaders See 2008 As Year To Build On New Activism  Jan 26, 2008
    a sickle cell anemia patient who died Jan. 5 in a juvenile boot-camp, complaining that he could not breath as he was roughed up by camp guards, who were later found not-guilty in his death; Genarlow Wilson, finally released from prison Oct. 26 by the Georgia Supreme Court after serving two years of a 10-year sentence in an Atlanta prison for having consensual oral sex with another teenager; Megan Williams, 20, the West Virginia woman who for a week in early September was tortured and made to eat... (Atlanta Daily World, GA)

    Hundreds gather to honor King  Jan 22, 2008
    In addition, the I Have a Dream Award was presented to the Sickle Cell Anemia Association during the ceremony. John Holly presented King's famous "I Have a Dream" speech to thunderous applause and a standing ovation at the conclusion. (Suffolk News Herald, VA)

    Event to raise funds for St. Jude Children’s Research Hospital  Jan 19, 2008
    Participants and attendees will help raise funds for children who are stricken with diseases such as cancer, AIDS and sickle cell anemia. The funds will help St. Jude in its ongoing fight against childhood cancer and other catastrophic diseases. (Somerset Daily American, PA)

    Sickle Cell Patients in More Pain Than Previously Thought  Jan 19, 2008
    " So, Smith decided to study how often these patients actually experienced pain. He gave several hundred people diaries to record daily how much pain they were having. He says he was surprised by what the subjects reported. " hspace=2 src="/english/images/sickle-cell.jpg" width=184 vspace=2 border=0. Sickle-shaped cells clump together and block blood flow in blood vessels, causing pain. (Voice of America)

    Teen of Queens mom missing in abuse case  Jan 18, 2008
    One day the boy, who had Down's syndrome, autism and sickle cell anemia, was feeling ill and was taken out of the apartment by Leekin, according to police. When she returned half an hour later, the boy was gone. (Forest Hills Ledger, NY)

    Minorities need apply, medical researchers say  Jan 15, 2008
    ICC has been involved in various research, including a 2,000-patient trial of a new osteoporosis device, a 1,000-patient study of ulcerative colitis and a smaller trial involving sickle cell anemia. According to a December report by the Pharmaceutical Research and Manufacturers of America, efforts like hers are beginning to make a difference with 691 medicines now being developed to treat major diseases that disproportionately affect blacks or are a major cause of death for that population. (Indianapolis Star)

    Video games help boost young cancer patients' morale  Jan 14, 2008
    Meanwhile, HopeLab is working on new games to help children cope with conditions ranging from sickle cell anemia to obesity. Hiawatha Bray can be reached at. (Boston Globe)

    Smith puts on running shoes to raise funds for cause  Jan 10, 2008
    PKD is the most common of all life-threatening genetic diseases, affecting more people than Down syndrome, cystic fibrosis, muscular dystrophy, hemophilia, sickle cell anemia and Huntington s disease combined. More than 600,000 Americans and 12. (DeRidder Beauregard Daily News, LA)

    Seekingstem celltreatmentsin China  Jan 7, 2008
    For decades, doctors around the world have been using adult stem cells from blood and bone marrow and more recently from umbilical cord blood to treat cancers of the blood like leukemia and lymphoma and blood diseases like sickle cell anemia. Click for related content. (MSNBC -- Health)

    More Sick Americans Head to China For Treatments  Jan 7, 2008
    For decades, doctors around the world have been using adult stem cells from blood and bone marrow and more recently from umbilical cord blood to treat cancers of the blood like leukemia and lymphoma and blood diseases like sickle cell anemia. Scientists have been exploring whether such adult stem cells and other cells such as those from the retina or fetal brain tissue could be used to replace cells lost because of injury or disease. (Fox News)

    Lampasas Community Blood Drive  Jan 3, 2008
    Patients receiving organ transplants, cancer therapies and support for sickle cell anemia depend on lifesaving transfusions. Blood is also critical to the survival of some premature babies and some patients undergoing heart or joint replacement surgery. (KWTX.com, TX)

    U.S. Stamp Celebrates China's 'Year of Rat'  Dec 30, 2007
    His pioneering work on protein structure was critical in establishing the field of molecular biology and his studies of hemoglobin led to many findings, including theclassification of sickle cell anemia as a molecular disease. Eric Sevareid (1912-1992) was a writer for the New York Herald Tribune and later a broadcast journalist for CBS radio recruited by Edward R. Murrow. (Newsmax)

    Red Cross Urges Blood Donations  Dec 29, 2007
    In response to emergencies such as car accidents, needing heart surgery or being diagnosed with cancer or sickle cell anemia, the American Red Cross Southern Blood Services Region provides blood and blood components for patients in more than 130 hospitals throughout Georgia and parts of Florida and South Carolina. While the American Red Cross invites everyone to donate blood, African Americans and Latin Americans are highly encouraged to donate blood and blood components. (Atlanta Daily World, GA)

    Postal Service Previews 2008 Stamps  Dec 28, 2007
    His pioneering work on protein structure was critical in establishing the field of molecular biology and his studies of hemoglobin led to many findings, including the classification of sickle cell anemia as a molecular disease. For each stamp, artist Victor Stabin of Jim Thorpe, PA, with the assistance of art director Carl Herrman of Carlsbad, CA, created a collage featuring a painted portrait of each scientist combined with diagrams or photographic representations associated with their major... (PR Newswire)

    Christmas without power  Dec 26, 2007
    She's suffering from the deadly sickle cell anemia disease. So Tina literally feels powerless. (FOX23.com, OK)

    Stem cell breakthrough like turning lead into gold  Dec 25, 2007
    Then just earlier this month a different team announced it had cured sickle cell anemia in mice using stem cells derived from adult mouse skin. "This is truly the Holy Grail: To be able to take a few cells from a patient - say a cheek swab or few skin cells - and turn them into stem cells in the laboratory," said Robert Lanza, a stem cell pioneer at Advanced Cell Technology. (The Age)

    4th Inf. Div. Soldiers bid farewell to fellow Soldier during memorial  Dec 24, 2007
    Until his passing, Carter was one of only 28 sickle cell anemia survivors in the nation. He was diagnosed with the disease as an infant but overcame the illness at the age of 15, when his sister, Crystal, donated bone marrow for a transplant. (KWTX.com, TX)

    New lease requires Grady to break even in 6 years  Dec 19, 2007
    It specifies that many of the specialties for which Grady is known be continued, including trauma and burn care, neonatology, community medicine, psychiatry and sickle cell anemia, diabetes, asthma and HIV services. It also requires the hospital authority's written approval of any cutbacks in the neighborhood clinics or Crestview nursing home. (Atlanta Journal-Constitution)

    Huge stem cell breakthrough  Dec 19, 2007
    Then just earlier this month a different team announced it had cured sickle cell anemia in mice using stem cells derived from adult mouse skin ... Researchers have already shown this is possible when they cured sickle cell anemia in mice. (iAfrica.com)

    State settles case of boy abused in foster care  Dec 18, 2007
    Ford, 32, lost custody of her four children for a period starting in 2004 when she was hospitalized for sickle cell anemia. Brandon and his sister Naya were sent to live with a foster family in Randallstown. (SunSpot.net)

    Profound immune system discovery opens door to halting destruction of lupus  Dec 14, 2007
    More Americans are diagnosed with lupus than with multiple sclerosis, cystic fibrosis, cerebral palsy, sickle cell anemia, or AIDS.. . (EurekAlert!)

    No holiday allowed for blood donations  Dec 12, 2007
    They're trauma victims or suffer from sickle cell anemia or cancer, like Ware. They depend on blood transfusions to stay alive. (Atlanta Journal-Constitution)

    In Yet Another Stem-Cell Miracle, Dems Have Dropped The Subject  Dec 12, 2007
    Last week, the journal Science reported that scientists had used reprogrammed skin cells to cure mice with sickle cell anemia. Embryonic stem cell research first became an issue in 2001, when President Bush limited federal funding for it. (Investors Business Daily)

    Local Briefs  Dec 11, 2007
    Dinner, toy giveaway scheduledSouthwest Fresno's sixth annual Christmas dinner and toy giveaway will take place Thursday at the Hinton Com- munity Center at 2385 S. Fairview Ave.Senior citizens and families who suffer from sickle cell anemia, an inherited disorder, will be served at 11 a.m. Everyone else will be served starting at 2 p.m. The event is sponsored by The Fresno Chapter Links Inc., an organization that raises money for college scholarships and provides health education programs.... (Fresno Bee -- Local)

    DNA pioneer James Watson is blacker than he  Dec 11, 2007
    It is more prevalent than sickle cell anemia for Africans. It may be the basis of several above listed afflictions. (Times Online)

    New ethical stem cell production technique confirmed  Dec 11, 2007
    Cambridge, Mass (CNA) : Researchers said on Thursday that they had proven in principle a new type of stem cell could be used as therapy after they used the cells to treat mice with sickle cell anemia, Reuters reports. A team at the Whitehead Institute of Biomedical Research in Cambridge, Massachusetts used stem cells created from skin cells to treat mice engineered to have sickle cell anemia, a blood disease caused by a defect in a single gene. (Indian Catholic)

    Researchers: Human evolution speeding up  Dec 11, 2007
    The gene for sickle cell anemia offers an advantage to people living in equatorial Africa, because it helps guard against malaria. Outside Africa, it's a different story. (USA Today -- Tech)

    Artificially Created Stem Cells Cure Sickle Cell in Mice  Dec 10, 2007
    Researchers at Whitehead have used the artificially created stem cells, created from mouse skin tissue, to cure mice of sickle cell anemia, a potentially fatal inherited disease. The research is published in the journal Science and is titled The research sounds so good that many might wonder why the scientists at Whitehead are not rushing to put the process to work curing human disease. (DailyTech)

    Sickle Cell Anemia Treated Using Reprogrammed Skin Cells In Mice  Dec 10, 2007
    Scientists in the US have used a recently proven stem cell technology based on reprogramming skin cells to make them act like embryonic stem cells to treat sickle cell anemia in mice ... In this new study, Townes and colleagues used mice with sickle cell anemia, a type of blood disorder caused by one faulty gene ... Sickle cell anemia causes red blood cells to curve which impedes their transit in blood vessels. (Medical News Today)

    Grady's biggest operation: 'Bottom line' surgery  Dec 9, 2007
    Right now, Grady hospital which provides metro Atlanta with its only Level 1 trauma center, as well as a major burn unit and clinics for AIDS and sickle cell anemia is just about broke, he said. Recent emergency funding of $25 million from Fulton and DeKalb counties "got us to this point," he said. (Atlanta Journal-Constitution -- Metro)

    Researchers Use New Stem Cell Method to Treat Mice  Dec 8, 2007
    CHICAGO (Reuters) - Using a new type of stem cells made from ordinary skin cells, U.S. researchers said on Thursday they treated mice with sickle cell anemia, proving in principle that such cells could be used as a therapy ... A team at the Whitehead Institute of Biomedical Research in Cambridge, Massachusetts, has now used the new cells to treat mice engineered to have sickle cell anemia, a disease of the blood caused by a defect in a single gene ... The researchers then coaxed these mouse... (MEDLINEplus)

    Stem Cells And Sickle Cell Anemia  Dec 7, 2007
    (WebMD) Stem cells may treat sickle cell anemia, new research shows. Sickle cell anemia is the most common inherited blood disorder in the U.S. It causes red blood cells to become misshapen ... Scientists announced Thursday that they have used stem cells to curb sickle cell anemia symptoms in mice. (CBS News)

    New stem cell method used to cure mice with sickle cell anemia  Dec 7, 2007
    New stem cell technique employed to cure mice with sickle cell anemia. Print| Text size + By Karen Kaplan Los Angeles Times / December 7, 2007. (Boston Globe)

    Find the latest in cancer news  Dec 7, 2007
    Scientists used new techniqueof making stem cells fromthe tails of sick mice to cure the rodents of sickle cell anemia. A Maine university tells 426 students they can't be on campus unless theymumps vaccines. (MSNBC -- Health)

    Scientists Cure Mice With Sickle Cell  Dec 7, 2007
    Scientists have the first evidence that those "reprogrammed stem cells" that made headlines last month really have the potential to treat disease: They used skin from the tails of sick mice to cure the rodents of sickle cell anemia. . (Herald Sun)

    Reprogrammed stem cells cure disease in mice  Dec 7, 2007
    WASHINGTON Scientists have the first evidence that those reprogrammed stem cells that made headlines last month really have the potential to treat disease: They used skin from the tails of sick mice to cure the rodents of sickle cell anemia ... Thursday, scientists in Alabama and Massachusetts reported a key next step when they used the technique to give mice with sickle cell anemia a healthy new blood supply. (Globe and Mail)

    Updated Analysis of 2001 Epoetin Alfa Study Posted  Dec 5, 2007
    g., sickle cell anemia, myelodysplastic syndromes, or hypercoagulable disorders). -- In some female patients, menses have resumed following PROCRIT therapy; the possibility of pregnancy should be discussed and the need for contraception evaluated. (PR Newswire)

    Full Story  Nov 24, 2007
    These are the same people that killed a 14-year-old boy," a reference to a February 2006 incident in which a teen died while being restrained by guards. A Bay County medical examiner later said the boy died from internal bleeding due to sickle cell anemia. "These are scary people down there. If I get sent back, they will retaliate. (New York Post -- Gossip)

    Stem cell transplant can grow new immune system in certain mice, Stanford researchers find  Nov 24, 2007
    Likewise, in people with a genetic disorder such as sickle cell anemia, the new blood system would not have the sickle-cell mutation, eliminating the cause of disease. However, the barriers are still significant. (EurekAlert!)

    Disease extracts toll on family  Nov 22, 2007
    Michael Somerset Having sickle cell anemia doesn't sap this 5-year-old Jacksonville kid's love of life and family ... Michael has sickle cell anemia, an inherited blood disease ... But unmitigated sickle cell anemia can lead to jaundice, extreme bouts of pain, strokes and even death. (Florida Times-Union)

    Ritalin Wars  Nov 19, 2007
    A very unrelated, yet illustrative example would be sickle cell anemia. It is pathological, but it is also an adaptation to malaria. (New York Times)

    More of this story  Nov 11, 2007
    SPECIAL EDUCATION: PASS OR FAIL. Who decides when a child needs special education. (Patriot Ledger, MA)

    Utah voucher program dies  Nov 8, 2007
    He argued the funding would help find cures for conditions such as spinal cord injuries, Parkinson's disease, sickle cell anemia and multiple sclerosis while also luring leading scientists and research firms to the state. But the measure was opposed by anti-abortion activists, conservatives and the Roman Catholic Church because it would pay for research that destroys human embryos and would increase state debt. (Pocatello Idaho State Journal, ID)

    Supreme Court clears way for new trial in 'shaken baby' case  Nov 6, 2007
    New defense lawyers later argued her trial attorney failed to present enough evidence to support Ware's claim that Jaden Paige died because of sickle cell anemia. Superior Court Judge Gail Flake threw out the conviction in December 2006, and Ware was released from prison. (Atlanta Journal-Constitution -- Metro)

    Molecular Medical Research Points To Treatment Of Spinal Muscular Atrophy  Nov 6, 2007
    30, 2007) A new biotechnology company founded by University of Delaware researchers, is developing technologies for repairing genes that cause rare, hereditary diseases such as sickle cell anemia and spinal. (Nov. (Science Daily)

    Things to know about Jazz heading into preseason  Nov 6, 2007
    jackboot wrote on Oct 9, 2007 6:02 PM:" I've got to say one thing here. The ailment Boozer's son has isn't cancer. It's sickle cell anemia, a hereditary blood disease that affects black Americans. But with the bone marrow transplant treatment, it's easy to think cancer first off. Still I'm looking forward to Carlos coming back when he's ready and having a great season with the Jazz, and best of luck to him and his family. ". Member ID. (Burley South Idaho Press, ID)

    People Profile---Blalock passionate about giving back to community  Oct 30, 2007
    To put that figure in perspective, it affects more people than cystic fibrosis, muscular dystrophy, hemophilia, Down syndrome, and sickle cell anemia combined. Courtney lost her mother to the disease when she was only 53, and her own daughter has also been diagnosed with PKD.. (Brenham Banner, TX)

    Of Genes for Therapies  Oct 28, 2007
    Diseases commonly considered bounded by race, such as sickle cell anemia, are not. Some of the highest rates of sickle cell occur among India's Pardhan and Oktar peoples, not Africans. (Wall Street Journal)

    Doctor-Patient Bond Frays After Medical Mistake  Oct 26, 2007
    Such was the case for those close to a young man with sickle cell anemia, mentioned in the NEJM article. The unnamed patient received morphine while in the hospital -- despite a well-documented allergy to the painkiller. (MEDLINEplus)

    Blood drive planned at high school  Oct 25, 2007
    Currently, RBC's are used to treat trauma victims, patients undergoing surgery, sickle cell anemia and certain types of cancer; and more uses are found nearly every day. In the time it has taken you to read this paragraph, approximately six people have needed RBC transfusions. (Grand Coulee Star, WA)

    Charting classroom ickies  Oct 22, 2007
    " High and middle schoolers, meanwhile, deal with more cases of mononucleosis and physical injury from accidents, she said. Communication of health news and concerns as it relates to breakout illnesses or vaccines are typically handled on a school by school basis, with the principals, teachers, parents and nurses informing each other. Individual care plans are developed by doctors and followed by parents and nurses who cover the set medical schedules. Nurses contribute their interactions to the... (Athens Banner-Herald)

    Umbilical cord donation helps stem cell research  Oct 20, 2007
    The stem cells taken from Keith's and Janiya's umbilical cord blood someday may treat a patient who has diseases such as sickle cell anemia or leukemia. Stem cells are immature cells that can develop into specialized cells such as blood, muscle and nerve cells. (Atlanta Journal-Constitution -- Metro)

    Champions Run For Life On Deck  Oct 19, 2007
    The Nevada Childhood Cancer Foundation's mission is to help families who have had a child diagnosed with a life threatening or critical illness such as cancer, HIV/AIDS, sickle cell anemia and other immunological diseases. The Foundation provides comfort and support while empowering and educating families and support staff. (Unlvrebels.com)

    Report: Boozer won't travel on preseason road trip  Oct 13, 2007
    Boozer's year-old son Carmani is recovering in Miami from a bone-marrow transplant related to his battle with sickle cell anemia. Boozer missed all of the team's preseason camp in Boise and Utah's preseason opener, a 90-81 loss to Milwaukee on Wednesday. (ESPN -- Golf News)

    High court questions right to reinstate murder conviction  Oct 11, 2007
    After more than a year behind bars, Ware, 34, was freed on bond when DeKalb Superior Court Judge Gail Flake ruled Ware's lawyer failed to prevent sufficient medical testimony to support Ware's contention the boy died of sickle cell anemia. Flake ordered a new trial. (Atlanta Journal-Constitution -- Metro)

    Lawyers to contest new trial in baby's death  Oct 9, 2007
    But a year later, the DeKalb County judge who had sentenced Ware to a life term for murder ruled she deserved a new trial this time with more medical testimony to support her claim that Jaden died of sickle cell anemia ... Instead, Ware's lawyers point to sickle cell anemia, saying the disease's devastating blood clotting produces results that can be mistaken for shaken baby syndrome. (Atlanta Journal-Constitution -- Metro)

    Use of umbilical cord blood pushed  Oct 8, 2007
    It is aimed at expanding options for new mothers to bank umbilical cord blood, a rich source of stem cells that can be used to treat certain cancers, sickle cell anemia and immune deficiencies. The program will inform women about storing cord blood for their family's use or donating it to others or for research. (Pittsburgh Post Gazette)

    A diverse range of risks  Oct 3, 2007
    Have a higher incidence of sickle cell anemia. American Indians. (San Diego Union-Tribune)

    Sickle cell network, others working to improve adult care  Sep 28, 2007
    It wasn't until she had complications during the birth of one of her own children about 20 years later that she learned she had sickle cell anemia an inherited disorder in which defective hemoglobin causes red blood cells to take on a sickle or crescent shape, hindering blood flow and depriving organs and tissues of oxygen. Now, at age 80, Diamond is proof that sickle cell doesn't have to be a death sentence and that patients can live well into adulthood. (Jefferson City News Tribune, MO)

    Townes tackles sickle cell anemia  Sep 27, 2007
    Tennessee Volunteers Football, Basketball, and Recruiting. com - Covering University of Tennessee Volunteer sports. (InsideTennessee.com)

    Jets players visit Hunt: Paralyzed HS senior has high spirits in ICU  Sep 14, 2007
    Hunt moved with his mother down to Florida from Queens, but when she died in 2001 of Sickle Cell Anemia, he and sister Amber, 15, moved back. He enrolled in Flushing midway through last school year and was behind in his studies, needing summer school. (Forest Hills Ledger, NY)

    Church officals conduct bone marrow drive  Sep 13, 2007
    PALM BAY For 20 long years Brian Lawrence has fought off the ravages of sickle cell anemia ... The (sickle cell anemia) is really affecting him now ... Sickle cell anemia, found mostly in people with African ancestry, is a condition in which the bodys red blood cells normally round and healthy become inflexible and shaped like crescent moons. (Florida Today)

    Ortho Biotech Supports FDA Advisory Committees' Recommendations on Use of ESAs in Chronic Renal Failure Patients  Sep 12, 2007
    -- The safety and efficacy of PROCRIT therapy have not been established in patients with a known history of a seizure disorder or underlying hematologic disease (eg, sickle cell anemia, myelodysplastic syndromes, or hypercoagulable disorders). -- In some female patients, menses have resumed following PROCRIT therapy; the possibility of pregnancy should be discussed and the need for contraception evaluated. (PR Newswire)

    'Channel 4 News Extra: On The Verge' Airs Sept. 16  Sep 12, 2007
    -- Dr. Bruce Hensel will explore cutting-edge advances in medical treatments for brain cancer, diabetes and sickle cell anemia in a half-hour special airing Sunday, Sept. 16, at 11:35 p.m.. "Channel 4 News Extra: On the Verge" is a half-hour special with Dr. Bruce Hensel examining three surprising medical discoveries that can potentially cure or dramatically alter the lives of millions of people with brain cancer, diabetes and sickle cell anemia ... The average life span for sickle cell anemia... (NBC4.tv, CA)

    Closest allies say Grady change crucial  Sep 3, 2007
    These doctors are in the trenches at Grady 24-7, providing all the world-class medical care in the ER, trauma surgery, HIV/AIDS and infectious diseases, mental health, burn, stroke, poison control, sickle cell anemia, hypertension, diabetes and dozens of other areas that we read about in the papers and see featured on TV.. When you read the phrase "Grady doctor" do a silent translation because those words really mean either "Emory doctor" or "Morehouse doctor." These physicians are truly... (Atlanta Journal-Constitution -- Opinion)

    Partnership aims to get more blacks to donate blood  Sep 1, 2007
    Only one thing prevented Nneka Chris-Ukoko from donating blood that could be used to ease her 11-year-old son's suffering from sickle cell anemia ... "And that's really helping individuals with sickle cell anemia." ... Sickle cell anemia is an inherited blood disorder characterized primarily by chronic anemia and periodic episodes of pain. (Houston Chronicle)

    What if you won?  Aug 30, 2007
    I would give my parents and siblings three million dollars each, put 15 million in a trust for my two children and give 10 million to various charities (Make-A-Wish, Carrie Steele-Pitts Home, Sickle Cell Anemia). By Rita. (Atlanta Journal-Constitution)

    Sickle Cell Anemia  Aug 29, 2007
    Why Blacks (and other races) should care about it. Blacks are the most prone American race to suffer from the disease. (Suite101.com)

    Handicap permit draws vigilantes  Aug 26, 2007
    I recently completed my doctoral dissertation on the experience of people with significant physical disabilities that are not obviously apparent, such as arthritis, muscular dystrophy, epilepsy, sickle cell anemia, severe asthma, and cardiac conditions. One consistent thorn in their already pained sides are the do-gooders who have deemed themselves the vigilante watchdogs of the disability access parking space. (Boston Globe -- Editorial)

    Children's Hospital Oakland has growth spurt  Aug 14, 2007
    CHORI's new Pediatric Global Health Initiative focuses on longtime institute efforts overseas, namely red blood cell diseases, such as sickle cell anemia; nutrition, especially during pregnancy; vaccine development and genetics ... For example, Lubin wants to set up or pilot a sibling cord blood program in India -- similar to CHORI's nationally recognized U.S. program -- to combat sickle cell anemia, thalassemia, leukemia and other disorders. (San Francisco Business Times, CA)

    Red Cross makes emergency appeal for blood  Aug 14, 2007
    Every day, blood and platelets are needed for patients with cancer, leukemia and sickle cell anemia as well as for burn victims, organ transplant patients, and accident victims. Without more people giving blood locally, the American Red Cross cannot ensure that hospitals will have the blood they need to treat all patients, added Beddingfield. (CHerokee County Herald, AL)

    Legislators touched by leukemia push cord blood measures  Aug 13, 2007
    According to mounting research, cord blood - which contains a cache of immature but highly adaptive cells - holds remarkable healing potential for as many as 70 blood diseases, including leukemia and sickle cell anemia. But California, unlike some other states, has no mechanism in place for a statewide public program to promote cord blood treatment and to collect donations. (San Francisco Chronicle -- Politics)

    Blood supplies low; donors, desperately needed  Aug 10, 2007
    Type O is the most critical now, but there is a need for all blood types today," emphasized Mark Beddingfield, CEO, American Red Cross Blood Services, Alabama and Central Gulf Coast Region. Lives depend on blood from volunteer donors. Every day, blood and platelets are needed for patients with cancer, leukemia and sickle cell anemia as well as for burn victims, organ transplant patients, and accident victims. Without more people giving blood locally, the American Red Cross cannot ensure that... (CHerokee County Herald, AL)

    Teamwork between 2 key proteins necessary for normal development and regulation of red blood cells  Aug 7, 2007
    6, 2007) Virginia Commonwealth University researchers studying hemoglobin genes, mutations of which play a role in genetic blood disorders like sickle cell anemia and beta-thalassemia, have identified two proteins that are responsible for regulating overlapping groups of genes during the development of red blood cells. The findings may point researchers to future gene therapies for patients with sickle cell anemia and beta-thalassemia ... If EKLF and KLF2 can turn on the embryonic globin genes... (EurekAlert!)

    To be or not to be a scientist  Aug 4, 2007
    All 45 students designed and tested their own research and developed their own methodology to research topics ranging from diabetes to sickle cell anemia. . (EurekAlert!)

    Starlight Starbright allows sick children and their families to cruise' through illness  Jul 23, 2007
    Starlight Father William Wallace, whose son Machiah suffers from sickle cell anemia, welcomes the relief the foundation provides. "A lot of time he's not able to get out," said Wallace. (WSVN-TV Miami, FL)

    Newborns tested for genetic disorders  Jul 13, 2007
    Topping the list, 13 states plus Washington, D.C., required testing of every newborn for the entire list of 29 conditions, which range from sickle cell anemia and cystic fibrosis to lesser known diseases such as the metabolic disorder LCHAD.. New Hampshire also began testing for all 29 conditions on July 1, after the report's deadline. (Herald Online, SC -- Health)

    Most US Newborns Now Screened for Genetic Disease  Jul 12, 2007
    Sickle cell anemia, congenital hypothyroidism, cystic fibrosis, hearing loss, phenyiketonuria (PKU, an enzyme deficiency), congenital adrenal hyperplasia, and galactosemia (another enzyme deficiency) are some of the most common genetic conditions included in the American College of Medical Genetic's list of 29 recommended screenings. The screening test for 28 of the conditions involves taking a drop of blood from a newborn's heel before the baby leaves the hospital. (Forbes)

    Report Says Most Newborns Are Checked For Rare Genetic Disorders  Jul 12, 2007
    A single drop of blood can determine hearing loss, sickle cell anemia, cystic fibrosis and other genetic diseases. So far, the federal government hasn't issued national screening guidelines. (KWTX.com, TX)

    Newborn testing expands to more states, disorders  Jul 11, 2007
    They range from cystic fibrosis and sickle cell anemia to rare metabolic disorders such as maple syrup urine disease. They were chosen because they can be detected in newborns and treated. (USA Today -- News)

    Screening May Lower Fertility For Some  Jul 8, 2007
    "A couple carries cystic fibrosis, sickle cell anemia the baby has a 25 percent chance of being affected by this. If we screen the embryo in advance, we can tell you that it is normal," Grunfeld said. "But the question is should every patient undergoing IVF (in-vitro fertilization) have their embryos screened before being replaced? The answer is no." MMVII, CBS Interactive Inc. All Rights Reserved. (CBS News)

    San Diego Blood Bank Naked Juice 5K Walk/Run  Jul 7, 2007
    BECAUSE EVERY THREE SECONDS SOMEONE NEEDS BLOOD You probably know someone who has been an accident victim; a burn victim; stricken with a life threatening disease like leukemia or sickle cell anemia; or had a newborn baby that needed a blood transfusion to live. Help Us Save Lives. (NBCSandiego.com, CA)

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